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我們的女兒張恩臨在100年5月29日的凌晨出生。不知道為什麼他那麼急得要出來,但是他出生的時候只有25週+1天。出生的時候只有654公克,非常非常小且非常軟弱。我從來不會忘記我看到我女兒的第一眼時的驚嚇;她那時全身插管貼線,好像一個科學實驗。她那時候真的是皮包骨,而我真的不敢動她,因為害怕不小心會傷到她。那天晚上,醫生就跟我說他真的不知道我女兒能不能活過那個禮拜,那個消息對我們來講是非常大的打擊,因為我們已經期待這個小天使的來臨六個月了。但那時候我們無能為力,只能禱告並相信中國醫藥學院新生兒加護病房裡的所有護士醫生們。接下來的四個半月我們本來應該在媽媽懷裡長大的女兒,卻在一個保溫箱𥚃慢慢長大。我們真的很感恩:我們女兒出生在醫療發達進歩的台灣,有先進的藥物和醫療器材,及愛心盡職的醫生護士團隊來搶救、醫治、幫助她維持她的生命。如果不是靠這些進步的醫療器材設備,真的不知道我們女兒今天還會不會跟我們在一起。年輕的父母真的非常需要台灣非常非常棒的健保的補助。我們女兒在醫院𥚃的保温箱躺了4個半月,出院時結帳是超過新台幣一百萬。如果沒有保險,我們一定付不起我們女兒當初得到的醫療和照顧。很難想像假如當初我們必須在負債及終結女兒生命二者間作選擇,會是怎樣的心痛歷程。還好感謝政府德政,我們當初不必做這樣的選擇,而今天我們的女兒是非常健康可愛的四歲小女孩。她非常聰明而帶給周遭的親朋好友很多喜樂。而我綐是喜歡說台灣的健保,幫助了許多像我們類似狀況的早產兒及其家庭,我們滿心感恩。所以我們很誠懇的希望未來的父母也是能夠享受我們當初享受到的醫療補助。
當一個孩子在那麼緊急的狀況下出生,父母親必須做很多不一樣的選擇和決定。在沒有準備下要做這麼多決定是非常有壓力的一件事。要明白醫生在形容早產兒的狀況,又要決定他們願意讓醫生做什麼樣的醫療已經夠煩惱了,更何況因要耽憂醫療費用,要作出決定是否讓孩子繼續住在保溫箱更是天人交戰!。
這些早產兒都是非常寶貴的生命,他們不是統計數字、也不是標本,他們是可愛的小天使,政府有義務責任要搶救照顧使他們存活。有一天這些小孩,會長大而成為我們社會和我們國家的棟樑,他們值得我們在他們最軟弱、最需要幫助的時候投資,讓他們能有最好的機會活下去。
Our daughter, Alicia, was born in the early morning of May 29, 2011, three months before her due date. Because she was born at 25 +1 week gestational age, she was only 654 grams at birth, extremely small and extremely weak. I’ll never forget the first moment I saw my daughter splayed out like a science experiment. She was all skin and bones and I dare not touch her for fear of breaking her. After my first visit with my daughter, the doctor pulled me aside and spoke to me earnestly. She told me that our daughter was in an extremely precarious position, and there were no guarantees that she would even survive past the week. That was a big blow to us, as we had eagerly anticipated the arrival of our precious baby girl for six months by this time. But there was little we could do but pray, and entrust the life of our baby girl into the hands of the doctors and nurses at China Medical University Hospital’s NICU. We will forever be grateful to these health professionals who poured their heart and their energy into the care and wellbeing of our little one. Over the next four and a half months, our daughter who should have been growing inside of my wife’s womb, grew up instead inside an incubator under the careful watch of these dedicated uncles and aunties. We are absolutely grateful that our daughter was born at a time as this where modern medicine and technology is so well-developed. If it weren’t for devices such as ventilators, incubators and monitors, I don’t know if our daughter would be with us today. It was also so vital for us at that point in our lives, being young parents, that we had the assistance of Taiwan’s incredible Health Insurance. By the time our daughter was finally discharged from the hospital, we had an incredible medical bill of over NT$1,000,000,000. If it hadn’t been for Health Insurance, there is no way that we would have been able to afford the level of care that our daughter received. I can’t even imagine needing to make a choice of either going into debt, or allowing my daughter to live. Thankfully, we didn’t have to make that choice. And today our daughter is a bright, healthy four-year-old who is incredibly smart and brings immense amounts of joy and happiness to everyone she comes in contact with. It is our sincerest hope and prayer that future parents would also be able to enjoy the support and assistance of Health Insurance to support them when they need it. When a child is born in such a critical nature, there are many, many decisions and plans that parents need to make. It is absolutely stressful enough for parents to try to understand all that is happening with the child, also the different medicines and procedures they need to go through, without needing to worry about whether or not they can afford the care needed to keep the child alive. These premature infants are precious lives. They are incredible valuable, and a treasure. They are not statistics, or specimens. They are human lives. Human lives that deserve to have the best chance at survival. One day these babies, these humans, will for sure grow up to give incredible contributions to our nation and our society. It is absolutely worth the investment to support these children at the most crucial and critical moments of their lives.
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