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Happy World Down Syndrome Day (WDSD)
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Show your support by snapping a photo of you wearing mismatched socks in prints or bright colours; in honour of our friends who rock an extra chromosome!
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#makchicWDSD
#WDSD #WorldDownSyndromeDay
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Spread the love xox
Today, Thursday 21st March 2019, marks #WorldDownSyndromeDay, which aims to bring awareness to people about #DownSyndrome. By the way, did you know that #WDSD was chosen to be on the 21st day of the 3rd month to signify the tripling of the 21st chromosome that causes Down Syndrome? Clever, right?
Last year, I talked about my thoughts on labelling people, and how people with Down Syndrome should not be called ‘special’. The world calls people with Down Syndrome, autism, or other syndromes ‘SPECIAL’ and they are said to have ‘SPECIAL NEEDS’. They think sugar-coating ‘disabled’ will lighten the effect, but from my humble point of view, it only hurts even more. For a start, being labelled differently means that they will only be separated from the crowd. It makes them feel alone and puts them on a different path from us in life.
This year, the theme is #LeaveNoOneBehind. This is a call to action to people with Down Syndrome, and I am writing on behalf of all those with Down Syndrome. I strongly agree with this ideology, as I believe that we are no different from them. They are equal, and they deserve all the opportunities that we get! Just because they have Down Syndrome does not mean that they should be denied the right to have the same opportunities as us.
People need to stop having negative attitudes and discriminating others with any kind of disability, and we can’t underestimate them either, because they have the ability to do great things too, but only if they are given a chance. And I think that we all should join together and leave no one behind, so that TOGETHER WE CAN CHANGE THE WORLD!
Written by,
Omar Mukhtar a.k.a. The Pawsome Lion
#The12YearOldAuthor
#BornToWrite
#GeniusFreeZone
thepawsomelion.wordpress.com
p/s: Like, comment & share this post to show your love for our friends who are rocking those extra chromosomes!
【愚人算命，智人改命】
"Does your child have an irregular heartbeat or a hole in his heart?"
I asked my client, after glancing at her son's Bazi.
Back in July, I wrote a post on the terrifying Kawasaki disease among young children. It got 75 shares.
That post attracted more parents with children of various health issues, to contact me in the past months.
My client replied, no abnormality was detected at birth.
3 weeks later, when I was analysing her Bazi, she told me her son's recent echocardiogram revealed a hole in his heart.
The doctor said it was very likely due to a birth defect, and not the Kawasaki disease that the son was recovering from.
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When I heard it, gratitude and admiration for my Shifu rose in my heart.
He was the teacher, who showed me how to identify if a Bazi had heart issues.
Shifu often chided me for having it too easy when it comes to learning Chinese Metaphysics. #Shifusostrict #wheregoteasy
After Shifu's father, a well-respected geomancer & TCM practitioner, passed away, Shifu had to go the rocky route of verifying everything he learnt and discovered on his own.
In his late 20s, he spent a good 2 years knocking on doors of HDB flats, to read people's Bazi and audit home Feng Shui for free, in Yishun, Chong Pang, Woodlands, Khatib, Admiralty, Tanjong Pagar and Ang Mo Kio estates.
Cladded in jeans and a T-shirt, with a backpack and a box file, Shifu would painstakingly analyse any Bazi and Chinese name given to him.
#whyhenocomeBukitHoSwee
Doors slammed on his face, dogs barked at him, old people shunned him, threats of calling the police were hurled at him.
There were also kind-hearted souls who gave Shifu an angpow as a token of their appreciation, or offered him dinner.
Every time Shifu reached home, he would be starving and perspiring like a polar bear.
One guy student (my senior) went door knocking with Shifu once, and was scared to go again the next day.
Shifu sometimes misses those days, and thinks none of us would do it with him. He said it was excellent on-the-ground training for you never know what you are going to get.
I volunteered myself.
I used to do door-to-door surveys for a market research company in my undergrad days.
But Shifu said I'm cotton candy soft and would run away the next day like his student. 😟
Till this day, Shifu still has clients from his HDB knocking days.
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Behind every good Feng Shui master, there are many untold stories of pain and sacrifice for him to achieve that level of mastery.
Few people cared about that.
Too many people waste too much time looking at us up and down suspiciously, and disregarding Chinese Metaphysics as old wives' tale.
They do not have the patience and scientific intelligence to suss out the real from the fakes. So they take one bamboo pole and whack the whole boat upside down.
The opportunity cost for them, however, is the chance to turn around their children's lives.
Many parents tell me: As a parent, I naturally want the best for my child.
True for some of them. Lying through the teeth for others. #連自己都騙
Not all parents love their children. Not all parents make sensible decisions.
Sometimes, wanting the best and doing their best mean two different universes.
There are clients who wanted me to read their children's Bazi, but their spouse object. Despite the clients having positive results.
A workshop participant was experiencing a problem during her pregnancy. I peeked into her family future, and I realise the problem at hand is just the tip of the iceberg.
I told her to look for my Shifu. He would have the merits to bail her family out from their difficult future, before it is too late.
She didn't.
She was confident about Shifu's skills in Wealth Feng Shui, read that he had helped a client's father recover from cancer but she had never read anything of his abilities in helping an unborn child from his testimonials.
#facepalm #whydidntsheask
Another lady didn't want to implement my Feng Shui recommendations for her child. She told it would be difficult.
I looked into her eyes as she spoke. Liar. She didn't want to spend money on the mini renovation for her least favourite child.
(By looking at the parent's and child's Bazi, it is easy to tell which child the parent favours.)
I spent a good 20 minutes, explaining again the adverse effects the room Feng Shui had on her child's future. It was already rearing its ugly head. Her disciplinary action had never worked and will never work, given such Feng Shui.
I reminded her the duty of a responsible parent. I didn't mince my words. You know me.
I could have just taken my fees and go. Who care what you want to do with your child's future? It's your child, your problem, not mine.
But coming from a single-parent family, not only do I care about children development, I am deeply concerned about what my motherland will become when these children grow up.
We already have a plummeting birth rate.
Every child's future saved, is one less problem for our society, and one more superhero for Singapore.
Let's not have too many broken adults, when we can build strong and compassionate children.
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The moment the child is conceived, with both parents' Bazi on hand, a competent Chinese Metaphysics practitioner can foretell the development of the foetus.
E.g. will the foetus have Down syndrome or other medical condition?
Will the mother experience miscarriage?
Will the foetus grow healthily?
How difficult will the pregnancy be for the mother?
How will the family fortune change?
What can the parents do?
If the practitioner had audited the home Feng Shui, more potential problems will be identified early in time, and resolved before it manifest in the pregnancy.
We are what we live in.
Some home Feng Shui problems handicap the couple from having a faithful and fulfilling marriage, including the lack of children.
Some Bazi, on the other hand, experience a downturn in their fates, after having children.
In cases I have seen where parents have sickly children, some causes are parents who committed much killing.
E.g. running a puppy mill, a fishing farm, a prawning facility.
The other day, I had a client who had a Down syndrome child. I applauded her determination in giving birth to the child. Her husband, however, wanted to abort.
My advice to any parent who want to kill their flesh and blood, because it's not up to their standard:
Don't even think about it.
Some children are our karmic debtors. When they come as sickly offspring, it means the debt you owe them require a long and intensive effort to repay.
If you kill your child, the karmic debt you owe your child will escalate. It will NOT disappear.
An aborted baby stays around to haunt his parents. For as long as the parents live. Or until the baby had taken vengeance.
No such thing as the killed baby vanishing into thin air after some time.
Violence never bring permanent peace.
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"When should we do a Bazi reading for our child?"
As soon as possible.
It is already difficult enough to raise a child, with both parents working.
Money is never enough. Time is never sufficient. Sleep is always lacking.
When we know how to help our children with their Bazi needs, the mutual understanding strengthens. We solve the problem right at the root, in the quickest time possible.
No more second guessing. No more quarrels.
Better performing children, happier parents.
As a mother, if I wish to get our child's Bazi read, my husband would have no chance to obstruct me from planning our child's future. (Not that my darling would.)
Because I'm also a 50% stakeholder, and I sacrifice my figure to carry our child in my uterus for freaking 9 months, shouldn't I have some say too? Not like I would blindly choose any Tom, Dick or Harry to read our child's Bazi. At most, I use my own money. 😄
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Any loving parent would wish to live to a ripe old age, to take care of the Down syndrome child.
From a Chinese Metaphysics point of view, if the child is at a very tender age, it is easier to minimise the impact of the extra chromosome, through Bazi analysis and Feng Shui.
What do we hope to achieve?
Better temperament. Better health. Improved social skills. Able to articulate better. Able to function as independently as possible. Attract more benefactors. Etc.
Aiming to live to 100 years old to take care of the child may be noble.
If you ask me, giving the child a positive environment to change his destiny is a wiser and more practical move.
But first, let's start with educating the parents on the wisdom behind Chinese Metaphysics.
產前的篩檢項目中，染色體檢查是相當重要的一項，尤其是高齡產婦或是流產高發生群孕婦。
Why do we need Prenatal Screening in the first trimester?
什麼是染色體？What is chromosome?
染色體是儲存人類遺傳訊息「基因」的結構, 正常嬰兒細胞染色體共有23對46條染色體.，分別來自父母雙方.
Chromosomes are a DNA, it dictates who we are, how we look like and our personality. Humans have 23 pairs of chromosomes, one set from each parent.
前22對叫做體染色體, 最後一對為性染色體（sex chromosomes），乃因決定人類性別. 正常男性帶著XY性染色體，女性為XX
Our 23rd pair of chromosomes dictates if we are male are female. XX being female, XY being male.
染色體異常 Chromosomes abnormality
染色體疾病的分類
染色體疾病可分為三大類：即數目異常、結構異常及混合有兩種或兩種以上細胞核型的拼湊型異常。
If there is any mismatch, addition or deletion in any of the 23 pairs chromosomes, mothers may have a miscarriage or infant may be born to have genetic defects, growth retardation or shorter lifespan.
「唐氏綜合症」(T21) 的嬰兒於在第21號染色體多一條所致，故這些嬰兒有47條，影響他們的外觀、身體及智力發展. 大約700人之中有一名會有唐氏綜合症。
Down Syndrome occurs when there is an extra chromosome 21.
除了第21對染色體，第13 「巴陶氏症」和18 「愛德華氏綜合症」對亦常見出現出錯問題，惟對胎兒發展影響更大，此類孩子通常難以生存。
艾德華氏症
艾德華氏症（Edwards syndrome）即三染色體18症，發生率約為每7,000個活產當中會出現一例，女性患者遠多於男性
Edwards Syndrome occurs when there is an extra chromosome 18.
巴陶氏症
巴陶氏症（Patau syndrome）即三染色體13症，
此症的發生率約為每20,000個活產兒會出現一例，由於13號染色體帶有較多的基因數，因此13號三染色體症會造成相當嚴重的傷害，其平均壽命約只有4～6個月，絕大多數的患兒在三歲以前均會夭折。
Patau syndrome occurs when there is an extra 13 chromosome.
透納氏症
透納氏症（Turner's syndrome）又稱為X單染色體症（monosomy X）， 這是唯一失去一整個染色體仍能存活的疾病。即使如此，大多數的X單染色體症胎兒在懷孕早期便自然流產或胎死腹中。
Turner's Syndrome occurs when one X chromosome is missing.
篩查測試去計算胎兒染色體綜合症的風險(或機會)
產前的篩檢項目中，染色體檢查是相當重要的一項，尤其是高齡產婦或是流產高發生群孕婦。
Therefore, it is important to have prenatal screening during the 9th-12th weeks of pregnancy.
Please watch the next video to find out what prenatal screening suits you.
Thanks for watching Mama College. Don't forget to subscribe and also follow me on facebook.
http://www.facebook.com/mamacollege
Kayi
[Read Me]
On 28th February, I probably had one of the hardest days of my life. I was told that our baby was screen positive in the NT scan. Our baby was in the high risk category for down syndrome. I wasn't told much but just that we would have to wait a whole week before we can see a doctor. On that day, I never knew I could cry out so many tears. I suddenly felt the overwhelming love for our baby. I think I realised how it really felt to be a mother. I realised that pregnancy/motherhood is not all rainbows and butterflies. I realised just how lucky I am to have such an amazing husband.
So in this Heart to Heart, I just share my experiences through the past few weeks. It's really tested our hearts and our patience. We held on to our faith and in the end, the Lord saw us through it all. I had never felt His presence like this before. Now I know how much love I have for our baby.
Now 3 weeks onwards with more test results. A rainbow has finally appeared after our storm. We were the 5% who were given with a false positive screening. Our baby went from having a 1/123 to 1/billion chance with Trisomy 21. Did our private doctor scam us into doing the expensive test? We'll never know and it doesn't matter. We're feeling so lucky and blessed right now.
We actually went for a baby check up today. Baby is super healthy and getting stronger by the day. Remember, most screen positive babies are born without down syndrome. Please mummies, don't worry yourself sick like I did. I hate myself for allowing myself to cry so so much... But I will spend the rest of my pregnancy smiling and laughing to make up to Peanut =) They say the mother can telepathically communicate with her baby. I really hope he/she knows how sorry I am.
I want to give a huge shout out to ALL the mothers out there. You are all amazing. I just feel so inspired by you guys out there. I have even more respect to the parents who are bringing up a child with down syndrome. You are absolutely amazing. It was reading your experiences that really helped us remember that no matter what happens, everything will be ok as long as the baby is born safely into the world. Every child is precious. Especially to their own parents. As Tim says, hey! It's just an extra chromosome!
I also want to say, reading your letters has helped me so much during our waiting period. I felt so much love. We receive an overwhelming amount of letters so I can't reply to most of you. However, I read EVERY single letter and I cherish each one. Thank you yet again for helping me pass through a difficult time once again.
Love, your friend Bubz xx
Connect with me:
MY WEBSITE: http://www.bubzbeauty.com
TWITTER: http://www.twitter.com/bubzbeauty
INSTAGRAM: http://www.instagram.com/itsbubz
FACEBOOK: http://www.facebook.com/itsbubz
SHOP: http://www.shopbubbi.com
Much love, Bubz xx
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