關於 spinalmuscularatrophy ，我們在網路上蒐集到這些相關的討論、資訊與評價

@spinalmuscularatrophymalaysia 🍃 HELP FOR TODAY, HOPE FOR TOMORROW 🍃

In conjunction with World Rare Disease Day, Trailblazers, students of Wawasan Open University have organized a virtual talk. Details are as below:

Date: 28th February 2021
Time: 12 p.m.
Joining Fee: RM5

“We can’t help everyone, but everyone can help someone.”

KINDLY SHARE THIS POST AND BE A PART OF THE CHANGE!

#SMAM #SpinalMuscularAtrophy #SMAawareness #SMAFighters #RareDisease #RaiseAwareness #FightSMA #WRDD

PS:
Donor will receive a 'Certificate of Gratitude' from SMA Malaysia. Therefore, kindly send the ‘contribution/donation’ receipt to Mr.Zulkhairi @ 012-5907108

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🍃 BANTUAN UNTUK HARI INI, HARAPAN UNTUK MASA HADAPAN 🍃

Sempena Hari Penyakit Langka Sedunia, Trailblazers, penuntut Wawasan Open University akan mengadakan ceramah maya. Berikut adalah maklumat ceramah:

Tarikh: 28 Februari 2021
Masa: 12 tengah hari
Yuran Penyertaan: RM5

"Kami tidak dapat menolong semua orang, tetapi semua orang dapat menolong seseorang."

HARAP KONGSI PAUTAN INI DAN JADI SEBAHAGIAN UNTUK PERUBAHAN!

#SMAM #SpinalMuscularAtrophy #SMAawareness #SMAFighters #RareDisease #RaiseAwareness #FightSMA #WRDD

PS: Penderma akan menerima Sijil Sumbangan dari SMA Malaysia. Oleh itu, sila kirimkan resit sumbangan kepada En.Zulkhairi @ 012-5907108

"How each mum worries about catching coronavirus now, is how I feel everyday for my child with SMA; protect and prevent we must but live life we have to - mums with rare disease do everyday”, @sookyee74 #wecarejourney #spinalmuscularatrophy #beatcovid19 #eachforequal
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Jom support @officialmrds Rare Disorder Society! #hikaririders

呢四本兒童繪本睇到我眼濕濕😢

書中講述脊髓肌肉萎縮症SMA患者嘅動人故事，佢地有嚴重及漸進性肌肉萎縮及無力，而且身體狀況會越嚟越差，霍金就係SMA嘅患者。

同小肥睡前閱讀呢套「堅毅的力量」，繪本除左令我地對SMA有更多了解外，亦教會小朋友人生遇上挫折都要積極面對💪🏻

大家有興趣可以了解下脊髓肌肉萎縮症慈善基金😊

#FSMAHK #spinalmuscularatrophy #堅毅的力量 #脊髓肌肉萎縮症 #biogen