@spinalmuscularatrophymalaysia 🍃 HELP FOR TODAY, HOPE FOR TOMORROW 🍃
In conjunction with World Rare Disease Day, Trailblazers, students of Wawasan Open University have organized a virtual talk. Details are as below:
Date: 28th February 2021
Time: 12 p.m.
Joining Fee: RM5
“We can’t help everyone, but everyone can help someone.”
KINDLY SHARE THIS POST AND BE A PART OF THE CHANGE!
#SMAM #SpinalMuscularAtrophy #SMAawareness #SMAFighters #RareDisease #RaiseAwareness #FightSMA #WRDD
PS:
Donor will receive a 'Certificate of Gratitude' from SMA Malaysia. Therefore, kindly send the ‘contribution/donation’ receipt to Mr.Zulkhairi @ 012-5907108
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🍃 BANTUAN UNTUK HARI INI, HARAPAN UNTUK MASA HADAPAN 🍃
Sempena Hari Penyakit Langka Sedunia, Trailblazers, penuntut Wawasan Open University akan mengadakan ceramah maya. Berikut adalah maklumat ceramah:
Tarikh: 28 Februari 2021
Masa: 12 tengah hari
Yuran Penyertaan: RM5
"Kami tidak dapat menolong semua orang, tetapi semua orang dapat menolong seseorang."
HARAP KONGSI PAUTAN INI DAN JADI SEBAHAGIAN UNTUK PERUBAHAN!
#SMAM #SpinalMuscularAtrophy #SMAawareness #SMAFighters #RareDisease #RaiseAwareness #FightSMA #WRDD
PS: Penderma akan menerima Sijil Sumbangan dari SMA Malaysia. Oleh itu, sila kirimkan resit sumbangan kepada En.Zulkhairi @ 012-5907108
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spinalmuscularatrophy 在 Noh Salleh Facebook 的精選貼文
"How each mum worries about catching coronavirus now, is how I feel everyday for my child with SMA; protect and prevent we must but live life we have to - mums with rare disease do everyday”, @sookyee74 #wecarejourney #spinalmuscularatrophy #beatcovid19 #eachforequal
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Jom support @officialmrds Rare Disorder Society! #hikaririders
spinalmuscularatrophy 在 小肥子星球-親子育兒手記 Facebook 的最佳解答
呢四本兒童繪本睇到我眼濕濕😢
書中講述脊髓肌肉萎縮症SMA患者嘅動人故事,佢地有嚴重及漸進性肌肉萎縮及無力,而且身體狀況會越嚟越差,霍金就係SMA嘅患者。

同小肥睡前閱讀呢套「堅毅的力量」,繪本除左令我地對SMA有更多了解外,亦教會小朋友人生遇上挫折都要積極面對💪🏻
大家有興趣可以了解下脊髓肌肉萎縮症慈善基金😊
#FSMAHK #spinalmuscularatrophy #堅毅的力量 #脊髓肌肉萎縮症 #biogen